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The survey, conducted for HealthyWomen.org, a top online women's health web site, found that it had taken most women who had fibromyalgia at least a year to get a diagnosis and that a fourth of them wait five years or more to find out what's incorrect. Elizabeth Battaglino Cahill, executive director of HealthWomen.org, told an estimated 75 percent of those with the disease may still be undiagnosed. The numbers, she noted, could rival those living with diabetes.
"Even minimal activity drains the living tar out of me," said Champneys. "By afternoon, I need to lie down and rest. If I am having a bad day, I have to use an electric wheelchair in stores. You get all kind of attractive looks if they see you walk up to it."